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Caring for a Person with Dementia

I've been immersed, along with my sister, in taking care of my mom, a 95-year-old retired nurse with moderate dementia. She has chosen to stay in her home--probably not the best idea in retrospect, at least for us caregivers. I've offered many times for her to come live with me but she's past the point of being able to weigh the pluses and minuses of such a decision. The main problem we're having is her need to get up multiple times at night to pee. That means she doesn't sleep well and neither do her caregivers--a sometimes unbearable frustration.

I've been delighted to see many resources available for caregivers--many of which are penned by daughters who've cared for parents with dementia. One such resource that caught my eye is Alzheimer's Daughter by Jean Lee. She talks about being "stuck in the muck" of caregiving. Yes, it does feel that way sometimes.

Here at ATrain Education we also have some good resources: Alzheimers Disease and Related Dementias covers many key issues related to dementia, including strategies for caring for family members with dementia. The course is available for anyone to read while also providing CE credits for nurses, PTs, and OTs. On the nutrition front, Alzheimers Disease International published an excellent paper last year on Nutrition and Dementia, which is well worth checking out.

If you're caring for a person with dementia or you simply want to learn more about the topic, we'd love to hear from you.

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22 comments

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