Agency for Healthcare Research and Quality (AHRQ). (2015a). Trained Consultants Support Caregivers of Patients with Dementia, Leading to Greater Empowerment, Less Use of Medical Services and Long-Term Care, and Cost Savings. Retrieved June 24, 2019 from https://innovations.ahrq.gov/profiles/trained-consultants-support-caregivers-patients-dementia-leading-greater-empowerment-less.
Agency for Healthcare Research and Quality (AHRQ). (2015b). Clinic Uses Team-Based Collaborative Care To Diagnose and Treat Dementia Patients and Support Their Caregivers, Leading to Better Outcomes and Lower Costs. Retrieved June 24, 2019 from https://innovations.ahrq.gov/profiles/clinic-uses-team-based-collaborative-care-diagnose-and-treat-dementia-patients-and-support.
Agens JE. (2010). Chemical and physical restraint use in the older person. BJMP 3(1):302. Retrieved June 1, 2019 from https://www.bjmp.org/content/chemical-and-physical-restraint-use-older-person.
Ahn H, Horgas A. (2013). The relationship between pain and disruptive behaviors in nursing home residents with dementia. BMC Geriatrics 13:14. Doi:10.1186/1471-2318-13-14. Retrieved June 5, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-13-14.
Al-Hameed S, M Benaissa, H Christensen, B Mirheidari, et al. (2019). A new diagnostic approach for the identification of patients with neurodegenerative cognitive complaints. PLOS|ONE. https://doi.org/10.1371/journal.pone.0217388. Retrieved June 24, 2019 from https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0217388.
Alzheimer’s Association. (2019). 2019 Alzheimer’s Disease Facts and Figures. Retrieved June 1, 2019 from https://www.alz.org/media/Documents/alzheimers-facts-and-figures-2019-r.pdf.
Alzheimer’s Association. (2019a). Massachusetts Alzheimer’s Statistics. Retrieved June 1, 2019 from https://www.alz.org/getmedia/5583a1f4-ad0a-4c87-8b87-0580b04c782f/massachusetts-alzheimers-facts-figures-2019.
Alzheimer’s Association. (2019b). Depression. Retrieved June 5, 2019 from https://www.alz.org/help-support/caregiving/stages-behaviors/depression.
Alzheimer’s Association. (2019c). Diagnosis and Medical Tests. Retrieved June 5, 2019 from https://www.alz.org/alzheimers-dementia/diagnosis and https://www.alz.org/alzheimers-dementia/diagnosis/medical_tests.
Alzheimer’s Association. (2019d). Treatments for Sleep Changes. Retrieved June 15, 2019 from https://www.alz.org/alzheimers-dementia/treatments/for-sleep-changes.
Alzheimer’s Disease International (ADI). (2018). World Alzheimer Report 2018. The state of the art of dementia research: New frontiers. Retrieved June 1, 2019 from https://www.alz.co.uk/research/WorldAlzheimerReport2018.pdf.
Alzheimer’s Disease International (ADI). (2016). World Alzheimer Report 2016. Improving healthcare for people living with dementia: Coverage, quality and costs now and In the future. Retrieved May 15, 2019 from https://www.alz.co.uk/research/WorldAlzheimerReport2016.pdf (full report) AND https://www.alz.co.uk/research/worldalzheimerreport2016sheet.pdf (two-page summary).
Alzheimer’s Disease International (ADI). (2013). World Alzheimer Report. A Journey of Caring, an Analysis of Long-term Care for Dementia. Retrieved June 5, 2019 from https://www.alz.co.uk/research/WorldAlzheimerReport2013.pdf.
Alzheimer’s Disease International (ADI). (2009). World Alzheimer Report 2009. Retrieved May 15, 2019 from https://www.alz.co.uk/research/files/WorldAlzheimerReport.pdf.
Alzheimer’s Disease International (ADI). (n.d.). About dementia. Retrieved June 1, 2019 from https://www.alz.co.uk/about-dementia.
American Geriatrics Society (AGS). (2019). for older people, medications are common; Updated AGS beers criteria aims to make sure they’re appropriate, too. (Updated AGS Beers Criteria for Potentially Inappropriate Medication Use in Older Adults.) Retrieved June 5, 2019 from https://www.americangeriatrics.org/media-center/news/older-people-medications-are-common-updated-ags-beers-criteriar-aims-make-sure AND https://www.healthinaging.org/tools-and-tips/ten-medications-older-adults-should-avoid-or-use-caution.
Arlotta CJ. (2015). Antipsychotic drugs hasten death in dementia patients. Forbes. Retrieved June 22, 2019 from https://www.forbes.com/sites/cjarlotta/2015/03/19/antipsychotic-drugs-hasten-death-in-dementia-patients/#4a3a9ba25e1b.
Blom MM, Zarit SH, Groot Zwaaftink RBM, et al. (2015). Effectiveness of an internet intervention for family caregivers of people with dementia: Results of a randomized controlled trial. PLoS ONE 10(2): e0116622. Doi:10.1371/journal.pone.0116622. Retrieved June 24, 2019 from https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0116622.
Burns K, Jayasinha R, Tsang R, Brodaty H. (2012). Behavior Management, a Guide to Good Practice: Managing behavioral and psychological symptoms of dementia. Dementia Collaborative Research Centre. Retrieved June 5, 2019 from http://www.dementiaresearch.org.au/images/dcrc/output-files/328-2012_dbmas_bpsd_guidelines_guide.pdf.
California Advocates for Nursing Home Reform (CANHR). (2018). Dementia Care Checklist. Retrieved June 10, 2019 from http://www.canhr.org/factsheets/rcfe_fs/html/rcfe_fs.dementia.htm.
California Advocates for Nursing Home Reform (CANHR). (2016). Restraint-Free Care. Retrieved June 10, 2019 from http://www.canhr.org/factsheets/nh_fs/html/fs_RestraintFreeCare.htm.
California Advocates for Nursing Home Reform (CANHR). (2012). Toxic Medicine: What you should know to fight the misuse of psychoactive drugs in California nursing homes. Retrieved June 10, 2019 from http://www.canhr.org/stop-drugging/download-the-guide / http://www.canhr.org/stop-drugging/.
Campernel S, Brummett W. (2010). Creating Environments of Support: A Handbook for Dementia Responsive Design. Available at http://www.brummettarchitects.com/ourresearch.htm.
Caspar S, Davis ED, Douziech A, et al. (2017, November). Nonpharmacological management of behavioral and psychological symptoms of dementia: What works, in what circumstances, and why? Innovation in Aging 1(3). Doi: 10.1093/geroni/igy001. Retrieved June 15, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6176983/.
Consumer Voice for Quality Long-Term Care. (2019). The Misuse of Antipsychotics Among Nursing Home Residents. Retrieved June 5, 2019 from https://theconsumervoice.org/issues/issue_details/misusing-antipsychotics.
de Oliveira AM, Radanovic M, de Mello PC, et al. (2018, July 23). An intervention to reduce neuropsychiatric symptoms and caregiver burden in dementia: Preliminary results from a randomized trial of the tailored activity program-outpatient version. International Journal of Geriatric Psychiatry. Doi: 10.1002/gps.4958. Retrieved June 15, 2019 from https://www.ncbi.nlm.nih.gov/pubmed/30035341.
de Oliveira AM, Radanovic M, de Mello PC, et al. (2015, November 29). Nonpharmacological interventions to reduce behavioral and psychological symptoms of dementia: A systematic review. BioMed Research International. doi: 10.1155/2015/218980. Retrieved June 15, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4676992/.
DeFina PA, Moser RS, Glenn M, et al. (2013). Alzheimer’s Disease Clinical and Research Update for Health Care Practitioners. Journal of Aging Research, Article ID 207178. Doi:10.1155/2013/207178 . Retrieved June 15, 2019 from https://www.hindawi.com/journals/jar/2013/207178/.
Deschenes CL, McCurry SM. (2009, February). Current Treatments for Sleep Disturbances in Individuals with Dementia. Current Psychiatry 11(1): 20–26. Retrieved June 1, 2019 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2649672/.
Desrosiers J, Viau-Guay A, Bellemare M, et al. (2014). Relationship-based care and behaviours of residents in long-term care facilities. Current Gerontology and Geriatrics Research, Article ID 949180. Doi:10.1155/2014/949180. Retrieved June 10, 2019 from https://www.hindawi.com/journals/cggr/2014/949180/.
Eliopoulos C. (2010) Gerontological Nursing, 9th ed. Wolters Kluwer Health. Philadelphia : Lippincott, Williams, & Wilkins.
Fraga FJ, Falk TH, Kanda PAM, Anghinah R. (2013). Characterizing Alzheimer’s Disease Severity via Resting-Awake EEG Amplitude Modulation Analysis. PLoS ONE 8(8): e72240. Doi:10.1371/journal.pone.0072240. Retrieved June 15, 2019 from http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0072240.
Futrell M, Melillo KD, Remington R. (2010, February). Wandering. Journal of Gerontological Nursing 36(2):6–16. DOI: 10.3928/00989134-20100108-02. Retrieved November 4, 2016 from https://www.healio.com/nursing/journals/jgn/2010-2-36-2/%7B42913621-1b2b-416d-8a87-ff0bafeb8b16%7D/wandering#divReadThis.
Gulpers MJM, Bleijlevens MHC, van Rossum E, et al. (2010). Belt restraint reduction in nursing homes: Design of a quasi-experimental study. BMC Geriatrics 10:11. Doi:10.1186/1471-2318-10-11. Retrieved June 5, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-10-11.
Handley M, Bunn F, Goodman C. (2015). Interventions that support the creation of dementia friendly environments in health care: Protocol for a realist review. Systematic Reviews 4:180. Doi:10.1186/s13643-015-0168-2. Retrieved June 10, 2019 from https://systematicreviewsjournal.biomedcentral.com/articles/10.1186/s13643-015-0168-2.
Harrington C, Carrillo H et al. (2018). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 2009 Through 2016. Retrieved June 25, 2019 from https://www.kff.org/report-section/nursing-facilities-staffing-residents-and-facility-deficiencies-2009-through-2016-facility-characteristics/.
Harrington C, Carrillo H. (2015). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 2009 Through 2014. Kaiser Family Foundation Report. Retrieved June 25, 2019 from https://theconsumervoice.org/uploads/files/issues/report-nursing-facilities-staffing-residents-and-facility-deficiencies-2009-through-2014.pdf.
Hope C, Estrada N, Weir C, et al. (2014). Documentation of delirium in the VA electronic health record. BMC Research Notes 7:208. Doi:10.1186/1756-0500-7-208. Retrieved June 1, 2019 from http://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-208.
Jennings LA, Laffan AM, Schlissel AC, et al. (2019). Health care utilization and cost outcomes of a comprehensive dementia care program for Medicare beneficiaries. JAMA Internal Med 179(2). doi:10.1001/jamainternmed.2018.5579. Abstract retrieved June 24, 2019 from https://www.ncbi.nlm.nih.gov/pubmed/30575846.
Jordan S, Gabe M, Newson L, et al. (2014). Medication monitoring for people with dementia in care homes: The feasibility and clinical impact of nurse-led monitoring. The Scientific World Journal, Article ID 843621. Doi:10.1155/2014/843621. Retrieved June 5, 2019 from https://www.hindawi.com/journals/tswj/2014/843621/.
Kaiser Family Foundation (KFF). (2017). Providers and Service Use. State Health Facts. Retrieved June 25, 2019 from https://www.kff.org/other/state-indicator/number-of-nursing-facilities/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D.
Kidder RM. (1996). How Good People Make Tough Choices: Resolving the Dilemmas of Ethical Living. New York: Wm. Morrow.
Knüppel H, Mertz M, Schmidhuber M, et al. (2013). Inclusion of ethical issues in dementia guidelines: A thematic text analysis. PLOS Medicine. Doi: 10.1371/journal.pmed.1001498. Retrieved June 25, 2019 from https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001498.
Kok JS, van Heuvelen MJG, Berg IJ, Scherder EJA. (2016). Small-scale homelike special care units and traditional special care units: Effects on cognition in dementia; a longitudinal controlled intervention study. BMC Geriatrics 16:47. Doi:10.1186/s12877-016-0222-5. Retrieved June 25, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-016-0222-5.
Lai CKY, Chow SKY, Suen LKP, and Wong IYC. (2011). The effect of a restraint reduction program on physical restraint rates in rehabilitation settings in Hong Kong. Rehabilitation Research and Practice, Article ID 284604. Doi:10.1155/2011/284604. Retrieved June 1, 2019 from https://www.hindawi.com/journals/rerp/2011/284604/.
Lykens K, Moayad N, Biswas S, et al. (2014) Impact of a Community Based Implementation of REACH II Program for Caregivers of Alzheimer’s Patients. PLoS ONE 9(2): e89290. Retrieved June 23, 2019 from Doi:10.1371/journal.pone.0089290. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0089290.
Mass.gov. (2019). Policy 18-02: Interim Policy on Compliance with Alzheimer’s and Related Dementias Training Requirement (February 7, 2019). Retrieved May 15, 2019 from https://www.mass.gov/lists/physician-regulations-policies-and-guidelines.
Mass.gov. (2019a). Residents’ Rights. Office of Elder Affairs. Retrieved June 21, 2019 from https://www.mass.gov/service-details/residents-rights.
Mass.gov. (2018). Governor Baker Signs Law Strengthening Alzheimer’s and Dementia in Massachusetts. Press Release. Office of the Governor. Retrieved May 15, 2109 from https://www.mass.gov/news/governor-baker-signs-law-strengthening-alzheimers-and-dementia-treatment-in-massachusetts.
Medscape. (2019). 2019 Beers Criteria for Drug Use in the Elderly, Updated (CME). Medscape Education Clinical Briefs. Retrieved June 21, 2019 from https://www.medscape.org/viewarticle/909799.
Mlinac ME, Feng MC. (2016, September). Assessment of activities of daily living, self-care, and independence. Archives of Clinical Neuropsychology 31(6). Doi.org/10.1093/arclin/acw049. Retrieved June 22, 2019 from https://academic.oup.com/acn/article/31/6/506/1727834.
Monk TH, Pfoff MK, Zarotney JR. (2013). Depression in the spousally bereaved elderly: Correlations with subjective sleep measures. Depression Research and Treatment, Article ID 409538. Doi:10.1155/2013/409538. Retrieved June 20, 2019 from https://www.hindawi.com/journals/drt/2013/409538/.
Moyle W, Jones C, Cooke M, et al. (2014). Connecting the person with dementia and family: A feasibility study of a tele-presence robot. BMC Geriatrics 14:7. Doi:10.1186/1471-2318-14-7. Retrieved June 20, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-14-7.
National Institute on Aging (NIA). (2019). Alzheimer’s Disease Fact Sheet. Retrieved June 1, 2019 from https://www.nia.nih.gov/health/alzheimers-disease-fact-sheet.
National Institute of Mental Health (NIMH). (2018). Depression. Retrieved June 5, 2019 from https://www.nimh.nih.gov/health/topics/depression/index.shtml.
National Institute on Aging (NIA). (2017). How Alzheimer’s Changes the Brain (video and transcript). Retrieved June 1, 2019 from https://www.nia.nih.gov/health/video-how-alzheimers-changes-brain.
National Institute on Aging (NIA). (2017a). What Happens to the Brain in Alzheimer’s Disease? Causes of Alzheimer’s Disease. Retrieved June 1, 2019 from https://www.nia.nih.gov/health/what-happens-brain-alzheimers-disease.
National Institute on Aging (NIA). (2014). Assessing Cognitive Impairment in Older Patients. Dementia Resources for Health Professionals. Retrieved June 5, 2019 from https://www.nia.nih.gov/health/assessing-cognitive-impairment-older-patients.
National Institute of Neurological Disorders and Stroke (NINDS). (2017). The Dementias: Hope Through Research. NIH Publication No. 17- NS-2252. Retrieved June 23, 2019 from https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Dementia-Hope-Through-Research.
National Institute of Mental Health (NIMH). (2016). Older Adults and Depression. Retrieved June 5, 2019 from https://www.nimh.nih.gov/health/publications/older-adults-and-depression/index.shtml and https://infocenter.nimh.nih.gov/pubstatic/19-MH-8080/19-MH-8080.pdf.
National Long-Term Care Ombudsman’s Resource Center. Nursing Home Residents’ Rights. Retrieved June 21, 2019 from https://ltcombudsman.org/uploads/files/issues/residents-rights-factsheet.pdf.
Noel-Weiss J, Cragg B, Woodend AK. (2012). Exploring how IBCLCs manage ethical dilemmas: A qualitative study. BMC Medical Ethics 13:18. Retrieved June 15, 2019 from https://bmcmedethics.biomedcentral.com/articles/10.1186/1472-6939-13-18.
Nuffield Council on Bioethics (NCB). (2009). Dementia: Ethical Issues. Retrieved June 1, 2019 from http://www.nuffieldbioethics.org/dementia and http://nuffieldbioethics.org/wp-content/uploads/2014/07/Dementia-report-Oct-09.pdf.
Peisah C, Skladzien E. (2014). The Use of restraints and psychotropic medications in people with dementia: A report for Alzheimer’s Australia. Retrieved June 1, 2019 from https://www.fightdementia.org.au/common/files/NAT/20140321_Publication_38_A4_print%20version_Web.pdf.
Petersen JD, FB Waldorff, VD Siersma, Phung TKT, et al. (2017). Major Depressive Symptoms Increase 3-Year Mortality Rate in Patients with Mild Dementia. International Journal of Alzheimer’s Disease. Volume 2017, Article ID 7482094. Retrieved June 20, 2019 from https://doi.org/10.1155/2017/7482094https://www.hindawi.com/journals/ijad/2017/7482094/#B5.
Petrovsky DV, McPhillips MV, Li J, Brody A, et al. (2018, November). Sleep disruption and quality of life in persons with dementia: A state-of-the-art review. Geriatric Nursing 39(6). doi: 10.1016/j.gerinurse.2018.04.014. Retrieved June 25, 2019 from https://www.ncbi.nlm.nih.gov/pubmed/29803606.
Rapaport P, L Webster, Ro Horsley, et al. (2018, November 8). An intervention to improve sleep for people living with dementia: Reflections on the development and co-production of DREAMS:START (Dementia RElAted Manual for Sleep: STrAtegies for RelaTives). Dementia 17(8): 976–89. Doi:10.1177/1471301218789559. Retrieved June 10, 2019 from https://journals.sagepub.com/doi/abs/10.1177/1471301218789559?journalCode=dema.
Reuben DB, Evertson LC, Wenger NS, et al. (2013, December). The UCLA Alzheimer’s and Dementia Care Program for Comprehensive, Coordinated, Patient-centered Care: Preliminary data. J Am Geriatr Soc 61(12):2214–18. Doi: 10.1111/jgs.12562. Retrieved June 24, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3889469/.
Rijnaard MD, van Hoof J, Janssen BM, et al. (2016). The factors influencing the sense of home in nursing homes: A systematic review from the perspective of residents. Journal of Aging Research, Article ID 6143645. Doi:10.1155/2016/6143645. Retrieved June 1, 2019 from https://www.hindawi.com/journals/jar/2016/6143645/.
Rowe MA, Vandeveer SS, Greenblum CA, et al. (2011). Persons with dementia missing in the community: Is it wandering or something unique? BMC Geriatrics 11:28. doi:10.1186/1471-2318-11-28. Retrieved June 5, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-11-28.
Ruthirakuhan M, Luedke AC, Tam A, et al. (2012). Use of physical and intellectual activities and socialization in the management of cognitive decline of aging and in dementia: A review. Journal of Aging Research. Article ID 384875. Doi:10.1155/2012/384875. Retrieved June 10, 2019 from https://www.hindawi.com/journals/jar/2012/384875/.
Sampson EL, Candy B, Jones L. (2009). Enteral tube feeding for older people with advanced dementia. Cochrane Database of Systematic Reviews. Doi: 10.1002/14651858.CD007209.pub2. Retrieved June 1, 2019 from https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD007209.pub2/full.
Savaskan E. (2015, June). Sleep Disorders in Dementia Patients. Z Gerontol Geriatr 48(4). Abstract retrieved June 25, 2019 from https://www.ncbi.nlm.nih.gov/pubmed/25957245.
Seegert L. (2018). Report finds antipsychotic drug use still rampant in some nursing homes. Covering Health (AHJC). Retrieved June 22, 2019 from https://healthjournalism.org/blog/2018/06/report-finds-antipsychotic-drug-use-still-rampant-in-some-nursing-homes/.
Soril LJJ, Leggett LE, Lorenzetti DL, et al. (2014). Effective use of the built environment to manage behavioural and psychological symptoms of dementia: A systematic review. PLoS ONE 9(12): e115425. Doi:10.1371/journal.pone.0115425. Retrieved June 25, 2019 from https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0115425.
Steinberg M, Lyketsos CG. (2012, September). Atypical antipsychotic use in patients with dementia: Managing safety concerns. Am J Psychiatry 169(9):900–906. Retrieved June 5, 2019 from https://ajp.psychiatryonline.org/doi/full/10.1176/appi.ajp.2012.12030342.
Tan ZS, Jennings L, Reuben D. (2014, April). coordinated care management for dementia in a large, academic health system. Health Aff (Millwood) 33(4):619–625. Doi:10.1377/hlthaff.2013.1294. Retrieved June 24, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4228980/.
van de Ven G, Draskovic I, van Herpen E, et al. (2014) The economics of dementia-care mapping in nursing homes: A cluster-randomised controlled trial. PLoS ONE 9(1): e86662. Doi:10.1371/journal.pone.0086662. Retrieved November 2, 2016 from http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0086662.
van der Ploeg ES, Camp CJ, Eppingstall B, et al. (2012). The study protocol of a cluster-randomised controlled trial of family-mediated personalised activities for nursing home residents with dementia. BMC Geriatrics 12(2). Doi:10.1186/1471-2318-12-2. Retrieved June 10, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-12-2.
Verbeek H, van Rossum E, Zwakhalen SMG, et al. (2009). The effects of small-scale, homelike facilities for older people with dementia on residents, family caregivers, and staff: Design of a longitudinal, quasi-experimental study. BMC Geriatr 9:3. Retrieved June 20, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2637879/.
Vroomen JM, Bosmans JE, van Hout HPJ, de Rooij SE. (2013). Reviewing the definition of crisis in dementia care. BMC Geriatrics 13:10. Doi:10.1186/1471-2318-13-10. Retrieved June 20, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-13-10.
World Health Organization (WHO). (1994 reprinted 2016). Help for care partners of people with dementia. Retrieved June 5, 2019 from https://www.alz.co.uk/adi/pdf/helpforcarepartners.pdf.