Alzheimer's Disease and Related Dementias, 3 unitsPage 13 of 13

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Resources

Caregiver Training and Support Services

AlzOnline: Caregiver Support Online
AlzOnline is part of the Center for Telehealth and Healthcare Communications at the University of Florida. It provides caregiver education, information, and support for those caring for a family member or friend with Alzheimer’s disease or related dementias.

 

alzonline.phhp.ufl.edu/

CJE Senior Life
CJE Senior Life provides caregivers with educational materials and resources that are applicable to many different caregiving situations. They address the risk of caregiver burnout by sharing expertise in dealing with the older adult population.

 

www.cje.net/

Family Caregiver Alliance (FCA)
FCA provides information, education, services, research, and advocacy for families caring for loved ones with chronic, disabling health conditions. They provide caregiving tips in person and online with resources listed by state.

 

www.caregiver.org

National Council of Certified Dementia Trainers
The Council was formed to promote standards of excellence in dementia education for professionals and other caregivers who provide services to dementia clients.

 

www.nccdp.org

Share the Caregiving
Share the Caregiving is dedicated to educating the caregiving communities about the effectiveness of the Share the Care model. Share the Care encourages ordinary people to pool their efforts to help ease the burden on family caregivers and help those without family nearby.

 

sharethecare.org/

Strength for Caring (SFC)
SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging online community, daily inspiration, and much needed support.

 

strengthforcaring.com/

Today’s Caregiver
Caregiver Media Group provides information, support, and guidance for family and professional caregivers. It publishes Today’s Caregiver magazine, the first national magazine dedicated to caregivers, presents Fearless Caregiver conferences, and offers a website that includes newsletters, online discussion lists, articles from Today’s Caregiver, chat rooms, and an online store.

 

Caregiver.com

References

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Agens JE. (2010). Chemical and physical restraint use in the older person. BJMP 3(1):302. Retrieved February 25, 2014 from http://www.bjmp.org/content/chemical-and-physical-restraint-use-older-person.

Algase DL, Beck C, Kolanowski A, et al. (1996). Need-driven dementia-compromised behavior: An alternative view of disruptive behavior. American Journal of Alzheimer’s Disease and Other Dementias 11(6):10–19.

Alzheimer’s Association. (2009). Take Care of Yourself: 10 Symptoms of Caregiver Stress. Retrieved May 11, 2014 from http://www.alz.org/national/documents/brochure_caregiverstress.pdf.

Alzheimer’s Disease International (ADI). (2013). World Alzheimer Report. A Journey of Caring, an Analysis of Long-term Care for Dementia. Retrieved April 9, 2014 from http://www.alz.co.uk/research/WorldAlzheimerReport2013.pdf.

Alzheimer’s Disease International (ADI). (2009). 10 Early Signs and Symptoms of Alzheimer’s. Retrieved April 15, 2014 from http://www.alz.org/alzheimers_disease_10_signs_of_alzheimers.asp.

Amella EJ. (2007). Eating and Feeding Issues in Older Adults with Dementia: Part I: Assessment. Try This: Best Practices in Nursing Care to Older Adults with Dementia. Retrieved February 25, 2014 from http://consultgerirn.org/uploads/File/trythis/try_this_d11_1.pdf.

Beauchamp TL, Childress JF. (2001). Principles of Biomedical Ethics, 5th ed., p. 228. New York: Oxford University Press.

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Buhr GT, Kuchibhatla M, Clipp EC. (2006). Caregivers’ Reasons for Nursing Home Placement: Clues for Improving Discussions with Families Prior to the Transition. The Gerontologist 46(1):52–61.

Burns K, Jayasinha R, Tsang R, Brodaty H. (2012). Behavior Management, a Guide to Good Practice: Managing Behavioral and Psychological Symptoms of Dementia. Dementia Collaborative Research Centre. Retrieved June 3, 2014 from http://www.dementiaresearch.org.au/images/dcrc/output-files/328-2012_dbmas_bpsd_guidelines_guide.pdf.

California Advocates for Nursing Home Reform (CANHR). (2011). Dementia Care Checklist. Retrieved May 11, 2014 from http://www.canhr.org/factsheets/rcfe_fs/html/rcfe_dementia_fs.htm.

Campbell NL, Dexter P, Perkins AJ, et al. (2013). Medication adherence and tolerability of Alzheimer’s disease medications: Study protocol for a randomized controlled trial. Trials 2013, 14:125. doi:10.1186/1745-6215-14-125. Retrieved February 19, 2014 from http://www.trialsjournal.com/content/14/1/125.

Campernel S, Brummett W. (2010). Creating Environments of Support: A Handbook for Dementia Responsive Design. Available at http://www.alz.org/co/in_my_community_10010.asp.

Cho K, Gagnon DR, Driver JA, et al. (2014). Dementia Coding, Workup, and Treatment in the VA New England Healthcare System. International Journal of Alzheimer’s Disease, vol. 2014, Article ID 821894. Retrieved April 17, 2014 from doi:10.1155/2014/821894.

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Desrosiers J, Viau-Guay A, Bellemare M, et al. (2014). Relationship-Based Care and Behaviours of Residents in Long-Term Care Facilities. Current Gerontology and Geriatrics Research. Vol. 2014, Article ID 949180, 8 pages. Retrieved April 14, 2014 from doi:10.1155/2014/949180.

Edelman T, Lerner D. (2013). Report on Antipsychotic Drug Deficiencies in Nursing Homes. Retrieved June 4, 2014 from http://www.theconsumervoice.org/ExaminingtheMisuseofAntipsychoticDrugs.

Eliopoulos C. (2010) Gerontological Nursing, 7th ed. Wolters Kluwer Health. Philadelphia : Lippincott, Williams, & Wilkins.

Folstein M, Folstein S, McHugh P. (1975). “Mini-Mental State”: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 12:189–98.

Fraga FJ,Falk TH, Kanda PAM, Anghinah R. (2013). Characterizing Alzheimer’s Disease Severity via Resting-Awake EEG Amplitude Modulation Analysis. PLoS ONE 8(8): e72240. doi:10.1371/journal.pone.0072240. Retrieved February 19, 2014 from http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0072240.

Futrell M, Melillo KD, Remington R. (2010). Wandering. Journal of Gerontological Nursing. February 2010, Volume 36, Issue 2: 6–16. Retrieved May 26, 2014 from DOI: 10.3928/00989134-20100108-02.

Gabard DL, Martin MW. (2003). Physical Therapy Ethics. Philadelphia: F. A. Davis.

Gillick MR, Volandes AE. (2008). The standard of caring: Why do we still use feeding tubes in patients with advanced dementia? J Am Med Dir Assoc 9(5), 364–67.

Gulpers MJM, Bleijlevens MHC, van Rossum E, et al. (2010). Belt restraint reduction in nursing homes: Design of a quasi-experimental study. BMC Geriatrics 10:11. Retrieved May 6, 2014 from doi:10.1186/1471-2318-10-11.

Gustafsson M, Karlsson S, and Lövheim H. (2013). Inappropriate long-term use of antipsychotic drugs is common among people with dementia living in specialized care units. BMC Pharmacology and Toxicology 2013, 14:10. Retrieved February 19, 2014 from doi:10.1186/2050-6511-14-10.

Harrington C, Carrillo H, Blank BW, O’Brian T. (2010). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 2004 Through 2009. Retrieved June 4, 2014 from http://www.theconsumervoice.org/sites/default/files/advocate/action-center/OSCAR-2010.pdf.

Health and Human Services (HHS). (2014). Adverse Events in Skilled Nursing Facilities: National Incidence among Medicare Beneficiaries. Retrieved May 9, 2014 from http://oig.hhs.gov/oei/reports/oei-06-11-00370.pdf.

Herrmann N, Lanctôt KL, Hogan DB. (2013). Pharmacological recommendations for the symptomatic treatment of dementia: The Canadian Consensus Conference on the Diagnosis and Treatment of Dementia 2012. Alzheimer’s Research & Therapy 2013, 5(Suppl 1):S5. Retrieved April 15, 2014 from doi:10.1186/alzrt201.

Hope C, Estrada N, Weir C, et al. (2014). Documentation of delirium in the VA electronic health record. BMC Research Notes 2014, 7:208. Retrieved April 15, 2014 from doi:10.1186/1756-0500-7-208.

Human Connectome Project (2014). Components of the Human Connectome Project: Task fMRI. Retrieved June 8, 2014 from http://www.humanconnectome.org/about/project/task-fMRI.html.

Inouye SK. (2006). Delirium in older persons. N Engl J Med 354(11):1157–65.

Johansson MM, Kvitting AS, Wressle E, Marcusson J. (2014). Clinical Utility of Cognistat in Multiprofessional Team Evaluations of Patients with Cognitive Impairment in Swedish Primary Care. International Journal of Family Medicine, vol. 2014, Article ID 649253. Retrieved May 19, 2014 from doi:10.1155/2014/649253.

Jordan S, Gabe M, Newson L, et al. (2014). Medication monitoring for people with dementia in care homes: The feasibility and clinical impact of nurse-led monitoring. The Scientific World Journal, vol. 2014, Article ID 843621, 11 pages, 2014. Retrieved February 25, 2014 from doi:10.1155/2014/843621.

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Lai CKY, Chow SKY, Suen LKP, and Wong IYC. (2011). The Effect of a Restraint Reduction Program on Physical Restraint Rates in Rehabilitation Settings in Hong Kong. Rehabilitation Research and Practice, vol. 2011, Article ID 284604, 9 pages, 2011. Retrieved February 25, 2014 from doi:10.1155/2011/284604.

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Leperoti R, Pedone C, Corsonello A. (2008). Antipsychotics for the Treatment of Behavioral and Psychological Symptoms of Dementia (BPSD). Curr Neuropharmacol 6(2): 117–24. Retrieved May 30, 2014 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2647149/#R10.

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Lykens K, Moayad N, Biswas S, et al. (2014) Impact of a Community Based Implementation of REACH II Program for Caregivers of Alzheimer’s Patients. PLoS ONE 9(2): e89290. Retrieved May 20, 2014 from doi:10.1371/journal.pone.0089290.

Monk TH, Pfoff MK, Zarotney JR. (2013). Depression in the Spousally Bereaved Elderly: Correlations with Subjective Sleep Measures. Depression Research and Treatment, vol. 2013, Article ID 409538. Retrieved May 29, 2014 from doi:10.1155/2013/409538.

Morrison RS, Magaziner J, Gilbert M, et al. (2003). Relationship between pain and opioid analgesics on the development of delirium following hip fracture. J Gerontol A Biol Sci Med Sci 58(1), 76–81. Retrieved February 25, 2014 from http://www.med.unc.edu/aging/ace/documents/hipopiod.pdf.

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