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Dementia and Aging Resources
The Alzheimer’s Project, located in Tallahassee provides comfort, support, and assistance to persons with memory disorders and their caregivers. It serves the Big Bend community of Florida through education and training, in-home respite, support groups, counseling, referral to community resources, and recovery of wanderers through the Project Lifesaver program. Services are free of charge. www.alzheimersproject.org/ 850 386 2778
Area Agency on Aging for North Florida
Serves as the designated Aging Resource Center for the Panhandle and Big Bend areas. Consumers, families and caregivers can access the Aging Resource Center in their community by calling the Elder Helpline. www.aaanf.org/800 963 5337
Florida Adult Day Services Association (FADSA)
Provides leadership, education, planning, and development of adult day services across Florida. FADSA promotes quality day services, respite programs, adult day health centers, and education, training, and advocacy within the long-term care industry. www.fadsa.net/
Florida Council on Aging
Serves Florida’s aging interests through education, information-sharing, and advocacy. Founded in 1955, it is Florida’s only statewide association representing virtually all aging interests and disciplines. www.fcoa.org/850 222 8877
Florida Department of Elder Affairs (FDEA)
A comprehensive listing of Alzheimer’s and dementia care resources throughout Florida including memory disorder clinics, model daycare, the Alzheimer’s Rural Care Healthline, Respite Services for Caregiver Relief, and links to Alzheimer’s disease information. elderaffairs.state.fl.us/english/alz.php/ 850 4142000
Florida Hospice and Palliative Care Association (FHPC)
FHPC is a not-for-profit organization representing Florida’s hospice programs. Its mission is to ensure access to hospice care, and it advocates for the needs of those in the final phases of life. www.floridahospices.org/ 800 282 6560
Florida Telecommunications Relay (FTRI)
A statewide nonprofit organization that administers the Specialized Telecommunications Equipment Distribution Program for citizens of Florida who are deaf, hard of hearing, deaf/blind, and speech impaired. Responsible for the education and promotion of the Florida Relay Service. www.fccdhh.org/services/assistive-technology/florida-telecommunications-relay-inc.html
Memory Disorder Clinic at the Tallahassee Memorial Neuroscience Center
A team of memory disorder specialists who provide a comprehensive diagnostic evaluation for persons concerned about memory problems. www.tmh.org/memory 850 431 5001
Caregiver Training and Support Services
AlzOnline: Caregiver Support Online
Part of the Center for Telehealth and Healthcare Communications at the University of Florida. Provides caregiver education, information, and support for those caring for a family member or friend with Alzheimer’s disease or related dementias. alzonline.phhp.ufl.edu/
CJE Senior Life
Provides caregivers with educational materials and resources for many different caregiving situations. Addresses the risk of caregiver burnout by sharing expertise in dealing with the older adult population. www.cje.net/
Family Caregiver Alliance (FCA)
Provides information, education, services, research, and advocacy for families caring for loved ones with chronic, disabling health conditions. In person and online resources listed by state. www.caregiver.org
Florida Elder Helpline
Provides information about elder services and activities, which is available through the Elder Helpline Information and Assistance service within each Florida County. http://elderaffairs.state.fl.us/doea/elder_helpline.php 850 414 2000
Florida Respite Coalition
Supports caregivers and promotes quality respite care to individuals with special care needs throughout the state. www.floridarespite.org
National Council of Certified Dementia Trainers
Promotes standards of excellence in dementia education for professionals and other caregivers who provide services to dementia clients. www.nccdp.org
Share the Caregiving
Dedicated to educating the caregiving communities about the effectiveness of the Share the Care model. Encourages ordinary people to pool their efforts to help ease the burden on family caregivers and help those without family nearby. sharethecare.org/
Strength for Caring (SFC)
Provide family caregivers with a broad range of expert content and information, an emerging online community, daily inspiration, and much needed support. strengthforcaring.com/
Information, support, and guidance for family and professional caregivers. Publishes Today’s Caregiver magazine, the first national magazine dedicated to caregivers, presents Fearless Caregiver conferences, and offers a website that includes newsletters, online discussion lists, articles from Today’s Caregiver, chat rooms, and an online store. Caregiver.com
Agency for Healthcare Research and Quality (AHRQ). (2015a). Trained Consultants Support Caregivers of Patients With Dementia, Leading to Greater Empowerment, Less Use of Medical Services and Long-Term Care, and Cost Savings. Retrieved December 15, 2016 from https://innovations.ahrq.gov/profiles/trained-consultants-support-caregivers-patients-dementia-leading-greater-empowerment-less.
Agency for Healthcare Research and Quality (AHRQ). (2015b). Clinic Uses Team-Based Collaborative Care To Diagnose and Treat Dementia Patients and Support Their Caregivers, Leading to Better Outcomes and Lower Costs. Retrieved December 15, 2016 from https://innovations.ahrq.gov/profiles/clinic-uses-team-based-collaborative-care-diagnose-and-treat-dementia-patients-and-support.
Ahn H, Horgas A. (2013). The relationship between pain and disruptive behaviors in nursing home residents with dementia. BMC Geriatrics 2013, 13:14. Doi:10.1186/1471-2318-13-14. Retrieved November 2, 2016 from http://www.biomedcentral.com/1471-2318/13/14.
Agens JE. (2010). Chemical and physical restraint use in the older person. BJMP 3(1):302. Retrieved December 12, 2016 from http://www.bjmp.org/content/chemical-and-physical-restraint-use-older-person.
Alzheimer’s Association. (2016). 2016 Alzheimer’s Disease Facts And Figures. Retrieved October 29, 2016 from http://www.alz.org/documents_custom/2016-facts-and-figures.pdf.
Alzheimer’s Disease International (ADI). (2016). World Alzheimer Report 2016. Improving healthcare for people living with dementia coverage: Quality and costs now and in the future. Retrieved October 29, 2016 from http://www.alz.co.uk/research/WorldAlzheimerReport2016.pdf.
Alzheimer’s Disease International (ADI). (2013). World Alzheimer Report. A Journey of Caring, an Analysis of Long-term Care for Dementia. Retrieved October 29, 2016 from http://www.alz.co.uk/research/WorldAlzheimerReport2013.pdf.
American Geriatrics Society (AGS). (2015). American Geriatrics Society 2015 Updated Beers Criteria for Potentially Inappropriate Medication Use in Older Adults. Retrieved December 12, 2016 from http://onlinelibrary.wiley.com/doi/10.1111/jgs.13702/full.
Blom MM, Zarit SH, Groot Zwaaftink RBM, Cuijpers P, Pot AM. (2015). Effectiveness of an Internet Intervention for Family Caregivers of People with Dementia: Results of a Randomized Controlled Trial. PLoS ONE 10(2): e0116622. Doi:10.1371/journal.pone.0116622. Retrieved December 15, 2016 from http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0116622.
Brodaty H, Donkin M. (2009). Family caregivers of people with dementia. Dialogues Clin Neurosci. 11(2): 217–28. Retrieved November 3, 2016 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3181916/.
Burns K, Jayasinha R, Tsang R, Brodaty H. (2012). Behavior Management, a Guide to Good Practice: Managing Behavioral and Psychological Symptoms of Dementia. Dementia Collaborative Research Centre. Retrieved November 2, 2016 from http://www.dementiaresearch.org.au/images/dcrc/output-files/328-2012_dbmas_bpsd_guidelines_guide.pdf.
California Advocates for Nursing Home Reform (CANHR). (2016). Dementia Care Checklist. Retrieved November 2, 2016 from http://www.canhr.org/factsheets/rcfe_fs/html/rcfe_dementia_fs.htm.
California Advocates for Nursing Home Reform (CANHR). (2012). Toxic Medicine: What you should know to fight the misuse of psychoactive drugs in California nursing homes. Retrieved December 12, 2016 from http://www.canhr.org/reports/2010/Toxic_Medicine.pdf.
Campernel S, Brummett W. (2010). Creating Environments of Support: A Handbook for Dementia Responsive Design. Available at http://www.brummettarchitects.com/ourresearch.htm.
Cho K, Gagnon DR, Driver JA, et al. (2014). Dementia Coding, Workup, and Treatment in the VA New England Healthcare System. International Journal of Alzheimer’s Disease, vol. 2014, Article ID 821894. Doi:10.1155/2014/821894. Retrieved April 17, 2014 from https://www.hindawi.com/journals/ijad/2014/821894/.
DeFina PA, Moser RS, Glenn M, et al. (2013). Alzheimer's Disease Clinical and Research Update for Health Care Practitioners. Journal of Aging Research, vol. 2013, Article ID 207178. Doi:10.1155/2013/207178 . Retrieved October 29, 2016 from https://www.hindawi.com/journals/jar/2013/207178/.
Deschenes CL, McCurry SM. (2009, February). Current Treatments for Sleep Disturbances in Individuals with Dementia. Current Psychiatry 11(1): 20–26. Retrieved November 4, 2016 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2649672/.
Desrosiers J, Viau-Guay A, Bellemare M, et al. (2014). Relationship-Based Care and Behaviours of Residents in Long-Term Care Facilities. Current Gerontology and Geriatrics Research. Vol. 2014, Article ID 949180. Doi:10.1155/2014/949180. Retrieved November 2, 2016 from https://www.hindawi.com/journals/cggr/2014/949180/.
Edelman T, Lerner D. (2016). Report on Antipsychotic Drug Deficiencies in Nursing Homes. Retrieved December 12, 2016 from http://theconsumervoice.org/issues/issue_details/misusing-antipsychotics.
Eliopoulos C. (2010) Gerontological Nursing, 7th ed. Wolters Kluwer Health. Philadelphia : Lippincott, Williams, & Wilkins.
Florida Center for Nursing (FCN). (2016). Florida’s Demand for Nurses: 2015 Employer Survey. Retrieved December 20, 2016 from https://www.flcenterfornursing.org/DesktopModules/Bring2mind/DMX/Download.aspx?Command=Core_Download&EntryId=1011&PortalId=0&TabId=151.
Fraga FJ,Falk TH, Kanda PAM, Anghinah R. (2013). Characterizing Alzheimer’s Disease Severity via Resting-Awake EEG Amplitude Modulation Analysis. PLoS ONE 8(8): e72240. Doi:10.1371/journal.pone.0072240. Retrieved October 31, 2016 from http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0072240.
Futrell M, Melillo KD, Remington R. (2010). Wandering. Journal of Gerontological Nursing. February 2010, Volume 36, Issue 2: 6–16. DOI: 10.3928/00989134-20100108-02. Retrieved November 4, 2016 from http://www.healio.com/nursing/journals/jgn/2010-2-36-2/%7B42913621-1b2b-416d-8a87-ff0bafeb8b16%7D/wandering.
Guideline Adaptation Committee (GAP). (2016). Clinical Practice Guidelines and Principles of Care for People with Dementia. Cognitive Decline Partnership Centre. Australian National Health and Medical Research Council. Retrieved November 2, 2016 from http://sydney.edu.au/medicine/cdpc/documents/resources/CDPC-Dementia-Guidelines_WEB.pdf.
Gulpers MJM, Bleijlevens MHC, van Rossum E, et al. (2010). Belt restraint reduction in nursing homes: Design of a quasi-experimental study. BMC Geriatrics 10:11. Doi:10.1186/1471-2318-10-11. Retrieved December 12, 2016 from http://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-10-11.
Handley M, Bunn F, and Goodman C. (2015). Interventions that support the creation of dementia friendly environments in health care: protocol for a realist review. Systematic Reviews 2015 4:180. Doi:10.1186/s13643-015-0168-2. Retrieved November 22, 2016 from https://systematicreviewsjournal.biomedcentral.com/articles/10.1186/s13643-015-0168-2.
Harrington C and Carrillo H. (2015). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 2009 Through 2014. Retrieved November 1, 2016 from http://theconsumervoice.org/uploads/files/issues/report-nursing-facilities-staffing-residents-and-facility-deficiencies-2009-through-2014.pdf.
Herrmann N, Lanctôt KL, Hogan DB. (2013). Pharmacological recommendations for the symptomatic treatment of dementia: The Canadian Consensus Conference on the Diagnosis and Treatment of Dementia 2012. Alzheimer's Research & Therapy 2013, 5(Suppl 1):S5. Doi:10.1186/alzrt201. Retrieved October 31, 2016 from https://alzres.biomedcentral.com/articles/10.1186/alzrt201.
Hope C, Estrada N, Weir C, et al. (2014). Documentation of delirium in the VA electronic health record. BMC Research Notes 2014, 7:208. Doi:10.1186/1756-0500-7-208. Retrieved October 31, 2016 from http://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-208.
Human Connectome Project (2016). Components of the Human Connectome Project: Task fMRI. Retrieved October 31, 2016 from http://www.humanconnectome.org/about/project/task-fMRI.html.
Jordan S, Gabe M, Newson L, et al. (2014). Medication monitoring for people with dementia in care homes: The feasibility and clinical impact of nurse-led monitoring. The Scientific World Journal, vol. 2014, Article ID 843621. Doi:10.1155/2014/843621. Retrieved October 31, 2016 from https://www.hindawi.com/journals/tswj/2014/843621/.
Kidder RM. (1996). How Good People Make Tough Choices: Resolving the Dilemmas of Ethical Living. New York: Wm. Morrow.
Knüppel H, Mertz M, Schmidhuber M, et al. (2013). Inclusion of Ethical Issues in Dementia Guidelines: A Thematic Text Analysis. PLOS Medicine. Doi: 10.1371/journal.pmed.1001498. Retrieved November 1, 2016 from http://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001498.
Kok JS, van Heuvelen MJG, Berg IJ, and Scherder EJA. (2016). Small scale homelike special care units and traditional special care units: effects on cognition in dementia; a longitudinal controlled intervention study. BMC Geriatrics 201616:47. Doi:10.1186/s12877-016-0222-5. Retrieved November 2, 2016 from http://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-016-0222-5.
Kolanowski A and Van Haitsma KS. (2014). Nursing Home Toolkit: Promoting Positive Behavioral Health. Retrieved December 12, 2016 from http://www.nursinghometoolkit.com.
Lai CKY, Chow SKY, Suen LKP, and Wong IYC. (2011). The Effect of a Restraint Reduction Program on Physical Restraint Rates in Rehabilitation Settings in Hong Kong. Rehabilitation Research and Practice, vol. 2011, Article ID 284604. Doi:10.1155/2011/284604. Retrieved December 12, 2016 from https://www.hindawi.com/journals/rerp/2011/284604/.
Lathren CR, Sloane PD, Hoyle JD, et al. (2013). Improving dementia diagnosis and management in primary care: A cohort study of the impact of a training and support program on physician competency, practice patterns, and community linkages. BMC Geriatrics 2013, 13:134. Doi:10.1186/1471-2318-13-134. Retrieved October 29, 2016 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-13-134.
Lobello K, Ryan JM, Liu E, et al. (2012). Targeting beta amyloid: A clinical review of immunotherapeutic approaches in Alzheimer's disease. International Journal of Alzheimer’s Disease, vol. 2012, Article ID 628070. Doi:10.1155/2012/628070. Retrieved October 31, 2016 from https://www.hindawi.com/journals/ijad/2012/628070/.
Lykens K, Moayad N, Biswas S, et al. (2014) Impact of a Community Based Implementation of REACH II Program for Caregivers of Alzheimer's Patients. PLoS ONE 9(2): e89290. Retrieved October 31, 2016 from Doi:10.1371/journal.pone.0089290. http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0089290.
Monk TH, Pfoff MK, Zarotney JR. (2013). Depression in the Spousally Bereaved Elderly: Correlations with Subjective Sleep Measures. Depression Research and Treatment, vol. 2013, Article ID 409538. Doi:10.1155/2013/409538. Retrieved November 3, 2016 from https://www.hindawi.com/journals/drt/2013/409538/.
Moyle W, Jones C, Cooke M, et al. (2014). Connecting the person with dementia and family: A feasibility study of a tele-presence robot. BMC Geriatrics 2014, 14:7. Doi:10.1186/1471-2318-14-7. Retrieved November 3, 2016 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/1471-2318-14-7.
National Institute on Aging (NIA). (2015). The Changing Brain in AD. Retrieved October 31, 2016 from http://www.nia.nih.gov/alzheimers/publication/part-2-what-happens-brain-ad/changing-brain-ad.
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Noel-Weiss J, Cragg B, Woodend AK. (2012). Exploring how IBCLCs manage ethical dilemmas: A qualitative study. BMC Medical Ethics 2012, 13:18. Retrieved November 1, 2016 from http://www.biomedcentral.com/1472-6939/13/18.
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Soril LJJ, Leggett LE, Lorenzetti DL, Silvius J, Robertson D, Mansell L, et al. (2014). Effective Use of the Built Environment to Manage Behavioural and Psychological Symptoms of Dementia: A Systematic Review. PLoS ONE 9(12): e115425. Doi:10.1371/journal.pone.0115425. Retrieved November 2, 2016 from http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0115425.
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van de Ven G, Draskovic I, van Herpen E, et al. (2014) The economics of dementia-care mapping in nursing homes: A cluster-randomised controlled trial. PLoS ONE 9(1): e86662. Doi:10.1371/journal.pone.0086662. Retrieved November 2, 2016 from http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0086662.
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