Florida: Alzheimer’s Disease and Related Dementias for Hospice, 3 units (373)Page 10 of 12

9. Resources

Alzheimer’s Association

The Alzheimer's Association leads the way to end Alzheimer's and all other dementia—by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Helpline: 800.272.3900 www.alz.org

Alzheimer’s Disease Education and Referral (ADEAR) Center

ADEAR was established in 1990 and is part of the National Institutes of Health. It compiles, archives, and disseminates information about Alzheimer's disease for health professionals, people with AD and their families, and the public. The website provides excellent educational material about Alzheimer’s disease, current research initiatives, support services, and much more. https://www.nia.nih.gov/alzheimers or call 800 438 4380.

Eldercare Locator

The Eldercare Locator, a public service of the Administration on Aging, U.S. Department of Health and Human Services, is a nationwide service that connects older Americans and their caregivers with information on senior services. https://eldercare.acl.gov/Public/Index.aspx 800 677 1116.

Family Caregiver Alliance (FCA)

A community-based nonprofit organization that addresses the needs of families and friends providing long-term care for loved ones at home. FCA provides assistance, education, services, research, and advocacy. www.caregiver.org or call 800 445 8106.

Florida Agency for Health Care Administration Hospice Services

Florida Medicaid hospice services for palliative care to terminally ill recipients. https://ahca.myflorida.com/medicaid/medicaid-policy-quality-and-operations/medicaid-policy-and-quality/medicaid-policy/medical-and-behavioral-health-coverage-policy/specialized-health-services/hospice-services.

Florida Hospice and Palliative Care Association

Florida Hospice & Palliative Care Association, Inc. (FHPCA) is a not-for-profit, IRS Section 501(c)(3) organization representing Florida’s hospice programs. Established in 1982, FHPCA was formed to be a unified voice for hospice programs in Florida. Hospice Helpline: (800) 282-6560 https://www.floridahospices.org/.

Hospice of Florida

Resources for patients and families who want to learn more about hospice, end of life care, as well as offer numerous clinical and government resource. (904) 789-3086 https://www.hospicefl.org/index.php.

National PACE Association

PACE is a program that provides and coordinates all types of care for your loved one so you don’t have to place them in a nursing home. PACE care includes medical and personal care, rehabilitation, social interaction, medications, transportation and more, all in one place so your loved one can live at home. https://www.npaonline.org/home or 703.535.1565.

Teepa Snow, Dementia Education and Training

An advocate for those living with dementia—has made it her personal mission to help families and professionals better understand how it feels to live with the challenges and changes that accompany various forms of dementia. Her company, Positive Approach, offers education to family and professional care partners all over the world. Training is available through video, online, and in-person trainings and consulting. http://teepasnow.com/or call 877 877 1671.