Dementia Special: Delirium, Alzheimer's, Dementia Care, and Supporting CaregiversPage 51 of 51

6. References / Quiz Login or Register

AARP. (2019). Care Act Gains Ground: 3 more states adopt law to help family caregivers. AARP Bulletin. October 2019. p. 6.

AARP. (2019a). The Caregiver Advise, Record, Enable (CARE) Act. Map. Retrieved November 4, 2019 from https://www.aarp.org/content/dam/aarp/ppi/2019/09/care-act-map.pdf.

Administration for Community Living (ACL). (2019). RAISE Family Caregiving Advisory Council. Retrieved October 24, 2019 from https://acl.gov/programs/support-caregivers/raise-family-caregiving-advisory-council. Page has links to advisory council agendas, summaries, and live recordings of meetings.

Administration for Community Living (ACL). (2019a). Supporting Community Living with Caregiving Advisory Councils. Retrieved October 24, 2019 from https://acl.gov/news-and-events/acl-blog/supporting-community-living-caregiving-advisory-councils.

Alzheimer’s Association (AlzA). (2019). The Public Health Approach. Retrieved October 25, 2019 from https://alz.org/professionals/public-health/the-public-health-approach.

Alzheimer’s Association (AlzA). (2019a). Caregiver Health. Retrieved October 31, 2019 from https://alz.org/help-support/caregiving/caregiver-health.
https://alz.org/help-support/caregiving/caregiver-health/caregiver-stress
https://alz.org/help-support/caregiving/caregiver-health/caregiver-stress-check
https://alz.org/professionals/public-health/core-areas/caregivers
https://alz.org/professionals/public-health/road-map

Alzheimer’s Association (AlzA). (2019b). Alzheimer’s Disease Facts and Figures 2019. Infographic and full report. Retrieved October 26, 2019 from https://alz.org/media/Documents/alzheimers-facts-and-figures-infographic-2019.pdf AND https://alz.org/media/Documents/alzheimers-facts-and-figures-2019-r.pdf.

Alzheimer’s Association (AlzA). (2019c). Health systems and clinicians: Helping you enhance care and improve outcomes. Retrieved October 27, 2019 from https://alz.org/professionals/health-systems-clinicians.

Birkenhager-Gillesse EG, Doudewijn JK, Zuidema SU, Achterberg WP. (2018). The “more at home with dementia” program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers. BMC Geriatrics 18, Article #: 252 (2018). Retrieved October 22, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-018-0948-3.

Blom MM, Zarit SH, Groot Zwaaftink RBM, et al. (2015). Effectiveness of an Internet Intervention for Family Caregivers of People with Dementia: Results of a Randomized Controlled Trial. PLOS|One. February 13, 2015. Retrieved October 27, 2019 from https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0116622. https://doi.org/10.1371/journal.pone.0116622.

Brodaty H, Donkin M. (2009, June). Family Caregivers of People with Dementia. Dialogues in Clinical Neuroscience, 11(2):217–28. Retrieved October 25, 2019 from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3181916/.

Centers for Disease Control and Prevention (CDC). (2019). Supporting Caregivers: A Healthy Brain Initiative Issue Map. Alzheimer’s Disease and Healthy Aging Program. Retrieved October 29, 2019 from https://www.cdc.gov/aging/healthybrain/issue-maps/supporting-caregivers.html and https://www.cdc.gov/aging/healthybrain/pdf/Issue-Map-Supporting-Caregivers-508.pdf

Centers for Disease Control and Prevention (CDC). (2019a). Tips for Caregivers. Health Literacy, Older Adults. Retrieved October 29, 2019 from https://www.cdc.gov/healthliteracy/developmaterials/audiences/olderadults/tipsforcaregivers.html.

Centers for Disease Control and Prevention (CDC). (2019b). Caregiving. Alzheimer’s Disease and Healthy Aging Program. Retrieved October 25, 2019 from https://www.cdc.gov/aging/caregiving/index.htm.

Centers for Disease Control and Prevention (CDC). (2019c). Caregiving for Person with Alzheimer’s Disease or a Related Dementia. Retrieved October 29, 2019 from https://www.cdc.gov/aging/caregiving/alzheimer.htm.

Centers for Disease Control and Prevention (CDC). (2019d). Caregiving for Family and Friends—A Public Health Issue. Alzheimer’s Disease and Healthy Aging Program. Retrieved October 29, 2019 from https://www.cdc.gov/aging/caregiving/caregiver-brief.html

Centers for Disease Control and Prevention (CDC). (2019e). Alzheimer’s Disease and Healthy Aging Data Portal. Retrieved October 22, 2019 from https://www.cdc.gov/aging/agingdata/index.html.

Christiansen S. (2019). Study Shows the Effectiveness of Supportive Care Approaches for Dementia. Our Blog, alzheimers.net. Retrieved October 27, 2019 from https://www.alzheimers.net/study-shows-the-effectiveness-of-supportive-care-approaches-for-dementia/.

Family Caregiver Alliance (FCA). (2016). Ch. 1: Transfer Skills (Caregiver College Video Series). Retrieved November 3, 2019 from https://www.caregiver.org/ch-1-transfer-skills-caregiver-college-video-series.

Family Caregiver Alliance (FCA). (2014). Definitions. Retrieved October 31, 2019 from https://www.caregiver.org/definitions-0.

Family Caregiver Alliance (FCA). (2012). Alzheimer’s Disease and Caregiving. Retrieved October 27, 2019 from https://www.caregiver.org/alzheimers-disease-caregiving.

Family Caregiver Alliance (FCA). (2006). Care Givers Count Too! A Toolkit to Help Practitioners Assess the Needs of Family Caregivers. Retrieved October 24, 2019 from https://www.caregiver.org/sites/caregiver.org/files/pdfs/Assessment_Toolkit_20060802.pdf.

Family Caregiver Alliance (FCA). (n.d.). FCA Learning Center. Retrieved November 3, 2019 from https://www.caregiver.org/caregiver-learning-center.

Home Alone Alliance. (n.d.). Family Caregiving How-To Video Series. Retrieved November 1, 2019 from https://www.aarp.org/ppi/initiatives/home-alone-alliance.html.

Kernisan L. (2019). What Are Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs)? Better Health While Aging: Practical Information for Aging Health and Family Caregivers. Retrieved November 1, 2019 from https://betterhealthwhileaging.net/what-are-adls-and-iadls/.

Kerr N. (2019). Family Caregivers Who Perform Medical Tasks Need More Support: 20 million people face caregiving challenges without training, report finds. AARP Family Caregiving Medical. April 17, 2019. Retrieved November 1, 2019 from https://www.aarp.org/caregiving/health/info-2019/medical-tasks-study.html.

Lloyd J, Muers J, Patterson TG, Marczak M. (2018). Self-Compassion, Coping Strategies, and Caregiver Burden in Caregivers of People with Dementia. Clinical Gerontologist 42, no. 1 (2019). Retrieved October 27, 2019 from https://www.tandfonline.com/doi/full/10.1080/07317115.2018.1461162.

Mayo Clinic. (2018). https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/caregiver-stress/art-20044784.

Mayo Clinic. (2017). Relaxation techniques: Try These Steps to Reduce Stress. Retrieved November 4, 2019 from https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/relaxation-technique/art-20045368?pg=2.

Medicare.gov (n.d.). PACE. Retrieved October 25, 2019 from https://www.medicare.gov/your-medicare-costs/get-help-paying-costs/pace.

Medicare.gov (2017). Quick Facts about Programs of All-Inclusive Care for the Elderly (PACE). Retrieved October 25, 2019 from https://www.medicare.gov/sites/default/files/2018-07/11341-pace.pdf.

Michigan Medicine, University of Michigan. (2017). “Pop drop” study finds more ER visits, higher costs for older disabled patients. Retrieved October 31, 2019 from https://www.sciencedaily.com/releases/2017/08/170824090105.htm.

Next Step in Care. (2015). For Family Caregivers: Medication Management. Guide/Form/Videos. Retrieved October 31, 2019 from https://www.nextstepincare.org/Caregiver_Home/Medication_Management_Guide/.

Next Step in Care. (2012). A Toolkit for Working with Family Caregivers. Retrieved November 4, 2019 from https://www.nextstepincare.org/providers/toolkit/.

Next Step in Care. (n.d.) Videos. Retrieved November 1, 2019 from https://www.nextstepincare.org/Videos/.

Reinhard SC, Levine C, Samis S. (2019). Home Alone Revisited: Family Caregivers Providing Complex Care. Founders of the Home Alone Alliance. Retrieved November 1, 2019 from https://www.aarp.org/content/dam/aarp/ppi/2019/04/home-alone-revisited-family-caregivers-providing-complex-care.pdf.

Reinhard SC, Given B, Petlick NH, Bemis A. (2008). Supporting Family Caregivers in Providing Care. In Hughes RG, ed. Patient Safety and Quality: An Evidence-Based Handbook for Nurses. Agency for Healthcare Research and Quality. Retrieved October 25, 2019 from: https://www.ncbi.nlm.nih.gov/books/NBK2665/.

Robinson L, Wayne MS, Segal J. (2019). Tips for Alzheimer’s & Dementia Caregivers. HelpGuide. Retrieved October 28, 2019 from https://www.helpguide.org/articles/alzheimers-dementia-aging/tips-for-alzheimers-caregivers.htm.

Sauer A. (2019). The Reasons Why Alzheimer’s and Dementia Caregivers Are So Stressed. Our Blog, alzheimers.net. Retrieved October 27, 2019 from https://www.alzheimers.net/the-reasons-why-alzheimers-and-dementia-caregivers-are-so-stressed/.

Slaboda J, Fail R, Norman G, Meier DE. (2018). A Study of Family Caregiver Burden and the Imperative of Practice Change to Address Family Caregivers’ Unmet Needs. Health Affairs Blog. January 11, 2018. DOI: 10.1377/hblog20180105.914873.

University of Michigan’s Institute of Gerontology & the National Association of Chronic Disease Directors. (2009). Implementing a Community-Based Program for Dementia Caregivers: An Action Guide using REACH OUT. National Association of Chronic Disease Directors, Atlanta, GA. https://cdn.ymaws.com/www.chronicdisease.org/resource/resmgr/Healthy_Aging_Critical_Issues_Brief/ReachOutActionGuide.pdf.

von Känel R., Mausbach BT, Dimsdale JE et al. (2019). Refining caregiver vulnerability for clinical practice: determinants of self-rated health in spousal dementia caregivers. BMC Geriatrics 19(18). Doi:10.1186/s12877-019-1033-2. Retrieved October 25, 2019 from https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-019-1033-2#citeas.

White CL, Overbaugh KJ, Pickering CEZ, Piernik-Yoder B, et al. (2018). Advancing care for family caregivers of persons with dementia through caregiver and community partnerships. Research Involvement and Engagement 4(1). Retrieved October 22, 2019 from https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-018-0084-4.

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