Dementia Special: Delirium, Alzheimer's, Dementia Care, and Supporting CaregiversPage 50 of 51

5. Conclusion

As medical care becomes more complex and people live longer, the share of the population over 60 continues to grow, and the incidence of Alzheimer’s disease and other dementias increases, many groups in society feel the effects and pressures. For the healthcare industry there are pressures both financial- and personnel-related. The number of providers with geriatric specialty training is not keeping pace with the growing need for that expertise. Some areas of the country and the world suffer real shortages of medical and community resources.

No doubt for healthcare providers it can be daunting to take on yet more responsibility but, in the long term, improving support to caregivers of those with Alzheimer’s and other dementias (and to all family caregivers) stands to save everyone—individuals, communities, state and federal governments—time and money by reducing the need for emergency visits, hospital readmissions, and related services, and improving the quality of life for care recipients, caregivers, and all those who support them.


This list includes resources directed toward healthcare providers and also resources that caregivers can be directed to for information and training materials.

Professional Courses & Training Methods

Both of these companies provide training in specific methods of working and communicating with persons with age-related cognitive decline that emphasize dignity and respect. These are for agencies, professionals, para-professionals, and family caregivers. Materials include DVDs, publications, workshops, courses, seminars, etc., and some material is available at no cost. No endorsement is implied by listings.

Teepa Snow / Positive Approach® to Care

Naomi Feil / Validation Training Institute

Organizational Resources

Family Caregiving / Caregiver Resource Center
Caregiver Stories
See also Home Alone Alliance.

Administration for Community Living (ACL) [was Administration on Aging (AOA)]
Support to Caregivers (2019)
Eldercare Locator (assistance in locating services)

Alliance for Aging Research
Alzheimer’s Disease: Helping Yourself Help a Loved One–Caregiver Workbook

Alzheimer’s Association
Educational material, and links to finding online and in-person support groups.
Training and Education Center—14 courses, most directed to caregivers
Caregiver Stress Check
Alzheimer’s and related Dementias Education and Referral Center (ADEAR)

Alzheimer’s Foundation of America
Resources for professional training and caregivers, memory screening, and helpline.

Alzheimer’s Research Forum
News website and information resource dedicated to helping researchers accelerate discovery and advance development of diagnostics and treatments for Alzheimer’s disease and related disorders.

American Psychological Association
Caregiver Briefcase

BrightFocus Foundation [was American Health Assistance Foundation (AHAF)]

Banner Alzheimer’s Institute
Dementia Dialogue / Alzheimer’s Insights: Caregiver Tips
Institute’s YouTube channel with 69 in-depth videos for caregivers.

Caregiver Bill of Rights

Centers for Disease Control and Prevention
Alzheimer’s disease and caregiver resources.

Family Caregiver Alliance
Fact and Tip Sheets (several dozen on dementia and caregiver topics)
National Center on Caregiving (NCC)
Caregivers Count Too! Toolkit
An Online Toolkit to Help Practitioners Assess the Needs of Family Caregivers
Caregiver College | 8 Video Series

Tips for Alzheimer’s & Dementia Caregivers

Home Alone Alliance
Family Caregiving How-To Video Series
Includes such general topics as Special Diets, Managing Incontinence, Wound Care, Mobility, Managing Medications, with videos on multiple sub-topics, downloadable PDFs of Resource Guides, and most are in English and Spanish

Collection of “communities” (discussion forums) related to specific diseases and caregiving.

Mayo Clinic
Searching on “Alzheimer’s” brings many pages a caregiver could use.


National Academies of Sciences, Engineering and Medicine
Health and Medicine Division [formerly the Institute of Medicine (IOM)]
Search on “caregiving” for numerous resources useful to healthcare providers Integrating Health Care and Social Services for People with Serious Illness: Proceedings of a Workshop
Study on Family Caregiving for Older Adults

National Alliance for Caregiving

National Hospice and Palliative Care Organization, CaringInfo Program

National Institute on Aging (part of NIH)
Alzheimer’s Disease & Related Dementias
Getting Help with Alzheimer’s Caregiving
Alzheimer’s and related Dementias Education and Referral Center (ADEAR)
Alzheimer’s and Dementia Resources for Professionals

Next Step in Care (United Hospital Fund)
Guides, Checklists, Videos—for family caregivers and providers in English, Spanish, Chinese, and Russian.
A Toolkit for Working with Family Caregivers

Rosalyn Carter Institute for Caregiving
Print and online materials, links to outside resources, and online and in-person training for volunteers and healthcare providers.

SymptomGuide Dementia
Phone app for Apple and Android for use by dementia caregivers.